2021 Family - The Penhollow Family

Jaxon was diagnosed with a rare mitochondrial disease that they are still trying to figure out all of they symptoms that come with it. to date, Jaxon has developmental delays (walking and talking), hyper and hypotonia, expressive language disorder, ESES (regression in motor skills), seizures and Thrombocytopenia. The doctors have little to no research on it, so Jaxon is part of their research at CHOP. They are astounded to see that out of the 8 in the world diagnosed, Jaxson has progressed the most and they truly correlate that to his early and continual forms of therapy. The goal is to allow progression with constant physical, occupational, speech, music and swim types of therapy. Not all of these are covered by health insurance.